I've been very unwell, hence MIA, but EXCELLENT NEWS!
 

Sorry about being away, I've been very, very unwell!

But last week there's been BRILLIANT news regarding FOP!

Fighting the Second Skeleton – Phenomena: The Loom

Sounds good, sounds like a possible real treatment. Sending healing thoughts your way.

Good luck to you. With science moving so fast, there is never reason to lose hope even though I am certain you have some very dark days. I am glad that you are feeling better and able to join us once more.

Good news. Hope your health can improve.

Sounds to me like we could all just one molecule away from all kinds of stuff!! Come to think about it ...I don't want to think about it!
Very interesting article, I hope they can come up with something soon. I've never heard of this before, you should tell us more about it...I hope all of the good wishes from here find you...Jean